Posts Tagged ‘Christine Maggiore’
Yesterday I listened, in growing disbelief, to the last episode of HIV-positive AIDS denialist Christine Maggiore’s regular podcast, “How Positive Are You?”. The programme is dated December 6th, just 3 weeks before Maggiore’s sudden death from pneumonia, although comments in the podcast itself suggest it was recorded the previous month.
The discussion is co-presented by David Crowe, who early in the programme recounts with pride some of the comments he has received via email. He’s particularly pleased about one from an HIV-positive listener who reads the “Alive and Well” website every day, and who has chosen to disregard his doctor’s advice, forgoing anti-retroviral drugs in favour of eating lots of nutritious food and breathing plenty of fresh air. “Wow, that’s beautiful”, Maggiore gushes.
Later on, Crowe and Maggiore conduct a phone interview with AIDS clinician Dr. Jocelyn Dee, who had (along with several colleagues) advised the makers of the TV drama “Law and Order SVU”. In October last year, the programme featured a fictional tragedy strikingly similar to that which hit Maggiore’s family in 2005, when her young daughter died suddenly from what a coroner later determined to be AIDS-related pneumonia. Maggiore, who was HIV positive, had refused to take medications that would have reduced the risk of transmission to her unborn child, and also declined to have her tested for HIV once she was born. Maggiore disputed the coroner’s report, and insisted that her daughter had in fact died from an allergic reaction to antibiotics. All of these details were echoed in the ostensibly-fictional TV show.
During the interview, Dr. Dee is initially unaware of Maggiore’s background, and of the final shape of the programme for which she had been an adviser; she explains that she found the show too difficult to watch because the subject matter was so close to the situations she saw every day through her work with HIV-positive people. When Maggiore finally reveals the full facts, Dee seems shocked yet sympathetic.
To hear Maggiore calmly recount the details of a programme so obviously based on her own life is chilling enough. But the most painful moment comes when she ridicules the fact that, in the fictionalised version of her life, the story ends with the denialist mother dying suddenly from an AIDS-related illness. Maggiore wonders aloud whether this might have been some kind of ‘wish fulfilment’ on the part of those who despise her refusal to accept the conventional view of HIV and AIDS.
Throughout the programme Maggiore seems lucid and eloquent. She was clearly a highly intelligent person who believed passionately that she was doing the right thing – which of course made her all the more dangerous. I’m not sure I’ve ever seen a starker illustration of how far a well-structured, well-intentioned, well-expressed, and internally consistent argument can take you, even when your basic facts are nonetheless catastrophically flawed. Tragically there are some facts that no amount of nuanced, intelligent argument can refute, or psychoanalyse away.
Comedian Bill Maher on Maggiore’s book “What If Everything You Thought You Knew about AIDS Was Wrong?”
One of the most striking features of the tragic life of AIDS denialist Christine Maggiore was her success in gaining high-profile support, perhaps most famously from Dave Grohl’s iconic band the Foo Fighters. Less well-publicised, if equally surprising, was the resounding endorsement given to Maggiore’s book, What If Everything You Thought You Knew about AIDS Was Wrong?, by the outspoken libertarian comedian Bill Maher.
“This is a book everyone should read, and not a moment too soon! One of the most corrosive flaws in America is our tendency toward conformity; in the quest to understand AIDS, it has been stifling. Christine Maggiore prompts the kind of questioning that is the lifeblood of scientific inquiry.”
The book has been described elsewhere as “unscholarly, misleading in its presentation of existing evidence and data”, and “based on speculation with no solid evidence to back up claims”.
It’s good to question conventional wisdom, except when it isn’t. Conventional wisdom holds that a bridge designed by engineers and built by reputable builders is safer to drive across than one designed by shamans and built by hairdressers. Questioning that conventional wisdom is not really all that productive, and if anyone listens to the questioning, it’s downright lethal.
So with Christine Maggiore.
Until the end, Christine Maggiore remained defiant.On national television and in a blistering book, she denounced research showing that HIV causes AIDS. She refused to take medications to treat her own virus. She gave birth to two children and breast fed them, denying any risk to their health. And when her 3-year-old child, Eliza Jane, died of what the coroner determined to be AIDS-related pneumonia, she protested the findings and sued the county.
That’s the risky kind of questioning conventional wisdom – and it risks other people as well as oneself. That’s why Prince Charles makes me angry when he indulges his passion for denouncing non-alternative medicine, and it’s why Juliet Stevenson made me angry when she used her celebrity to denounce the conventional wisdom about the MMR vaccine and autism, and it’s why Christine Maggiore makes me angry even though she’s now dead. It makes me angry that she breast-fed her children and it makes me angry that she went on television to denounce research showing that HIV causes AIDS. People shouldn’t do that. People shouldn’t take on life and death medical issues when they have no training or expertise in the subject. People shouldn’t trust their own judgment that completely.
For years, the South African government joined with Maggiore in denying that HIV is responsible for AIDS and resisting antiretroviral treatment. According to a new analysis by a group of Harvard public health researchers, 330,000 people died as a consequence of the government’s denial and 35,000 babies were born with the disease.
It’s not a subject for hobbyists or cranks or princes or actors. Children must never play with matches.
From Dean’s World
I don’t want to bring anything loud or contentious to Christine’s memory, or provide a feeding ground for those few vultures whose egos remain tied up in their insatiable death wishes, not only those they projected onto Christine, but onto all HIV positive people they wish to enslave with their cult of fear, and deprive of the fundamental human right to make their own choices.
Christine lived with a (fluctuating) positive HIV status for almost 17 years, not only healthy, but as leader for those who felt voiceless and powerless. She represented, and stood for the highest ideals of truth-seeking, life, love, health, and freedom from tyranny. She represented herself in all that she wrote, said, and enacted, each day that she lived. I defy anybody to find one instance of Christine Maggiore communicating malevolence or ill-will toward any human being, no matter what they had done to her. I also defy anybody to find one example in which her attackers chose to treat her with respect, fairness, dignity, or decency. Find one.
Our actions and words define us. We all get to draw the image of our own face, slowly, into the world around us, and by the time we die, that face will be defined, and it we’re lucky, we will be loved and missed and remembered for who we really were, and wanted to be. We live on in the memory of others. I have been deeply moved by the floods of letters and emails and calls I have been getting from people all around the world who Christine inspired and touched and helped.
I have no doubt that Maggiore suffered horribly from the grief that comes from losing a child, and I’m not unsympathetic to that. She suffered a loss that no parent should have to suffer, made all the more tragic because it was potentially preventable…. However, the clear preventability of Eliza Jane Scovill’s death is why my sympathy for her mother only goes so far. While my sympathy for Eliza Jane for having had her young life snuffed out prematurely by AIDS is enormous, my sympathy for Eliza Jane’s mother ended at the point that she allowed an antivaccine and HIV/AIDS denialist hack to try to whitewash her daughter’s autopsy report and try to spin the cause of death as being from an antibiotic reaction… My sympathy also bumps up against Maggiore’s prominent role in spreading a denialist philosophy that has arguably led to the deaths of an estimated hundreds of thousands in Africa…
HIV/AIDS denialism is a delusion that kills. It kills by encouraging HIV+ individuals not to take antiretroviral drugs, which have been shown unequivocably to prolong life and forestall progression of HIV infection to AIDS. It kills by encouraging quackery over effective antiretroviral therapy, as has happened in Africa, particularly under Thabo Mbeki’s regime in South Africa. Indeed, it has been estimated that the delay in introducing HAART therapy into Africa, which was in part due to denialist policies, resulted in the potentially preventable deaths of over 300,000. In the case of Christine Maggiore and her family, it has claimed at least one life and likely two lives, devastating a family. Unfortunately, HIV/AIDS denialists will continue to use logical fallacies, pseudoscience, and cherry picking of data and studies to argue otherwise.
From Dean’s World
The news has been shattering to all who loved her around the world. Speaking for myself, I can say that Christine Maggiore was one of the strongest, most ethical, compassionate, intelligent, brave, funny, and decent human beings I have ever had the honor to know. I spoke to her in great depth about all aspects of life, death, love, and this battle we both found ourselves mired in, and I will be writing about her and about those conversations here, in the future. No matter what she was going through, and it was always, frankly, sheer hell–every day of her life, since 2005, she faced, acute grief, sadistic persecution, wild injustice, relentless battle, and deep betrayal–she was always there for her friends, and she never descended to human ugliness. She always tried to take the high road. She always tried to be stronger than any human being could ever be asked to be. I feared for her life, always. I feared the battle would kill her, as I have felt it could kill me, if I couldn’t find enough beauty to offset the malevolence. This is a deeply occult battle, and Christine got caught in its darkest shadows.
She had apparently been on a radical cleansing and detox regimen that had sickened her and left her very weak, dehydrated, and unable to breathe. She was shortly thereafter diagnosed with pneumonia and placed on IV antibiotics and rehydration. But she didn’t make it.
Those who loved her, as I did, have our own interpretations of what ultimately killed her–a combination of unrelenting heartbreak and the effect of being subject to a constant, unrelenting media driven hate campaign, despite the complete legal clearing of her name in the death of her daughter Eliza Jane in 2005, who died after taking an antibiotic, and whose cause of death has been tortuously debated. Christine and her husband Robin were denied the right to adopt a child, or foster a child, due to a single article in the L.A. Times which cast her as a murderer.